The 20 Best Clouston Syndrome Doctors Near Me in New York, NY

Find the Top Clouston Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 54 doctor with experience in Clouston Syndrome near New York, NY. Of these, 40 are Experienced, 12 are Advanced and 2 are Distinguished.

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54 providers found
    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology

    Rockefeller University Hospital

    1230 York Ave, 
    New York, NY 
     (4.3 miles away)
    Languages Spoken:
    English

    John Frew is a Dermatologist practicing medicine in New York, New York. Dr. Frew is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Hidradenitis Suppurativa, Pyoderma Gangrenosum, Acne, Stevens-Johnson Syndrome, and Tissue Biopsy.

    Advanced in Clouston Syndrome
    Dermatology
    Advanced in Clouston Syndrome
    Dermatology

    Israel Englander Department Of Dermatology - Weill Greenberg Center

    1305 York Ave Fl 9, 
    New York, NY 
     (4.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Shari Lipner is a Dermatologist practicing medicine in New York, New York. Dr. Lipner is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 32 other conditions, according to our data. Her clinical expertise encompasses Ringworm, Autosomal Recessive Hypotrichosis, Anonychia Congenita, and Athlete's Foot.

    Experienced in Clouston Syndrome
    Pediatric Neurology
    Experienced in Clouston Syndrome
    Pediatric Neurology

    Northwell Health Physician Partners Neurology At Third Avenue

    1317 3rd Avenue, 8th Floor, 
    New York, NY 
     (4.8 miles away)
    Languages Spoken:
    English, Spanish
    Offers Telehealth

    Pediatric Neurologist and Clinical NeurophysiologistDirector of Pediatric Epilepsy Program at Lenox Hill Hospital Northwell HealthDirector of International Pediatric Neurology Program Northwell HealthClinical Professor of Neurology and Pediatrics, Zucker School of Medicine at Hofstra/Northwell. Dr. Bluvstein is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Seizures, Myoclonic Epilepsy, West Syndrome, and Epilepsy. Dr. Bluvstein is board certified in American Board Of Psychiatry/Neurology-Epilepsy and American Board Of Psychiatry & Neurology-Neurology With Special Qualifications In Child Neurology.

    Learn about our expert tiers
    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology

    Dermatopathology Laboratory

    222 E 41st St Fl 25, 
    New York, NY 
     (3.2 miles away)
    Languages Spoken:
    English

    Adam Rubin is a Dermatologist practicing medicine in New York, New York. Dr. Rubin is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 37 other conditions, according to our data. His clinical expertise encompasses Bowen's Disease, Stiff Skin Syndrome, Lichen Planus, Basal Cell Skin Cancer, and Thymectomy.

    Advanced in Clouston Syndrome
    Advanced in Clouston Syndrome

    Rockefeller University Hospital

    1230 York Ave, 
    New York, NY 
     (4.3 miles away)
    Languages Spoken:
    English

    Jean-laurent Casanova is a Pediatrics provider practicing medicine in New York, New York. Dr. Casanova is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Multisystem Inflammatory Syndrome in Children (MIS-C), Pyle Disease, Osteomyelitis in Children, Pulmonary Alveolar Proteinosis, and Lymphadenectomy.

    Experienced in Clouston Syndrome
    Neuroradiology
    Experienced in Clouston Syndrome
    Neuroradiology

    Memorial Sloan Kettering Cancer Center

    1275 York Ave, 
    New York, NY 
     (4.4 miles away)
    Languages Spoken:
    English

    Sofia Haque is a Neuroradiologist practicing medicine in New York, New York. Dr. Haque is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Pediatric Low-Grade Glioma (pLGG), Caudal Regression Syndrome, Spondylocarpotarsal Synostosis Syndrome, and ALK-Positive Non-Small Cell Lung Cancer.

    Advanced in Clouston Syndrome
    Pediatric Cardiology
    Advanced in Clouston Syndrome
    Pediatric Cardiology

    Mount Sinai

    1 Gustave L Levy Pl, 
    New York, NY 
     (6.1 miles away)
    Languages Spoken:
    English

    Bruce Gelb is a Pediatric Cardiologist practicing medicine in New York, New York. Dr. Gelb is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses RASopathies, Congenital Heart Disease (CHD), Cardiomyopathic Lentiginosis, Noonan Syndrome, and Heart Transplant.

    Experienced in Clouston Syndrome
    Neurosurgery
    Experienced in Clouston Syndrome
    Neurosurgery

    Och Spine At NewYork-Presbyterian/The Spiral

    504 West 35th Street, 
    New York, NY 
     (2.7 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dr. Andrew Chan serves as Director of Minimally Invasive Scoliosis Surgery and Director of Neurosurgical Spine Research. In patient care, Dr. Chan specializes in surgeries for a variety of conditions, including spinal deformities such as scoliosis and kyphosis, spinal tumors, and degenerative spinal disease (affecting the cervical, thoracic and lumbar spine). His surgical techniques range from minimally invasive to complex. Dr. Chan earned his medical degree at Columbia University's Vagelos College of Physicians and Surgeons and completed his residency in the Department of Neurological Surgery at the University of California, San Francisco (UCSF). His additional training includes a fellowship in spinal deformity and minimally invasive complex spine surgery at Duke University.Dr. Chan is focused on improving spine surgical care via his research. He has won multiple awards for his research including: The Neurosurgery Top Spine Paper of the Year with the Congress of Neurological Surgeons (CNS); the Stewart Dunsker Award for Best Clinical Spine Abstract at the American Association of Neurological Surgeons (AANS); and the Journalistic and Academic Neurosurgical Excellence (J.A.N.E.) and Mayfield Clinical Science Awards at the AANS/CNS Joint Section Meeting on Disorders of the Spine and Peripheral Nerves. He also prides himself on his patient care, having received the prestigious Howard Naffziger Award for Outstanding Clinical Service while at UCSF. Dr. Chan is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Spondylolisthesis, Cervical Myelopathy, Cervical Spondylosis, Laminectomy, and Spinal Fusion. Dr. Chan is currently accepting new patients.

    Advanced in Clouston Syndrome
    Advanced in Clouston Syndrome

    Memorial Sloan Kettering Cancer Center

    1275 York Ave, 
    New York, NY 
     (4.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Yasmin Khakoo is a Neurologist practicing medicine in New York, New York. Dr. Khakoo is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Aplasia Cutis Congenita, Ectodermal Dysplasias, Clouston Syndrome, and Embryonal Tumor with Multilayered Rosettes. Dr. Khakoo is currently accepting new patients.

    Distinguished in Clouston Syndrome
    Pediatrics | Dermatology
    Distinguished in Clouston Syndrome
    Pediatrics | Dermatology
    161 Fort Washington Ave, 
    New York, NY 
     (9.4 miles away)
    Languages Spoken:
    English

    Maria Garzon is a Pediatrics specialist and a Dermatologist practicing medicine in New York, New York. Dr. Garzon is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Hemangioma, PHACE Syndrome, Aplasia Cutis Congenita, and Ectodermal Dysplasias.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Neurology At Lower Manhattan

    156 William St Fl 11, 
    New York, NY 
     (0.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Arathi Nandyala is a Neurologist practicing medicine in New York, New York. Dr. Nandyala is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Headache, Progressive Hemifacial Atrophy, Migraine, and Sporadic Hemiplegic Migraine. Dr. Nandyala is currently accepting new patients.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology
    462 1st Ave, 
    New York, NY 
     (2.4 miles away)
    Languages Spoken:
    English

    Lisa Travis is a Dermatologist practicing medicine in New York, New York. Dr. Travis is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Keratitis-Ichthyosis-Deafness Syndrome, Familial Atypical Multiple Mole Melanoma Syndrome, Giant Congenital Melanocytic Nevus, and Giant Congenital Nevus.

    Experienced in Clouston Syndrome
    Pediatric Neurology
    Experienced in Clouston Syndrome
    Pediatric Neurology

    Metropolitan Urological Specialist PC

    160 E 32nd St, 
    New York, NY 
     (2.6 miles away)
    Languages Spoken:
    English

    Kaleb Yohay is a Pediatric Neurologist practicing medicine in New York, New York. Dr. Yohay is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), RASopathies, and CLN2 Disease.

    Experienced in Clouston Syndrome
    Internal Medicine
    Experienced in Clouston Syndrome
    Internal Medicine

    Office

    522 1st Ave, 
    New York, NY 
     (2.6 miles away)
    Languages Spoken:
    English

    Benjamin Neel is a primary care provider, practicing in Internal Medicine in New York, New York. Dr. Neel is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Noonan Syndrome, RASopathies, Cardiomyopathic Lentiginosis, and Cerebral Hypoxia.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology
    161 Madison Ave Rm 6se, # 6se, 
    New York, NY 
     (2.7 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    N Hennessey is a Dermatologist practicing medicine in New York, New York. Dr. Hennessey is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Hypomelanotic Disorder, Dyschromatosis Symmetrica Hereditaria, Griscelli Syndrome, and Dyschromatosis Universalis Hereditaria.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    550 1st Ave, 
    New York, NY 
     (2.7 miles away)
    Languages Spoken:
    English

    Julia Schneider is a Neurologist practicing medicine in New York, New York. Dr. Schneider is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Brain Tumor, Glioblastoma, Astrocytoma, Nerve Decompression, and Craniectomy.

    Experienced in Clouston Syndrome
    Pediatric Neurology
    Experienced in Clouston Syndrome
    Pediatric Neurology

    Werner K Doyle M.D. PC

    223 E 34th St, 
    New York, NY 
     (2.7 miles away)
    Languages Spoken:
    English

    Daniel Miles is a Pediatric Neurologist practicing medicine in New York, New York. Dr. Miles is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Sturge-Weber Syndrome, Seizures, Generalized Tonic-Clonic Seizure, and Memory Loss.

    Experienced in Clouston Syndrome
    Neurosurgery
    Experienced in Clouston Syndrome
    Neurosurgery

    Midtown Dermatology Services PC

    317 E 34th St, 
    New York, NY 
     (2.7 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Eveline Hidalgo is a Neurosurgery provider practicing medicine in New York, New York. Dr. Hidalgo is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Hydrocephalus, Schizencephaly, Brain Tumor, Awake Craniotomy, and Deep Brain Stimulation.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Midtown Dermatology Services PC

    317 E 34th St, 
    New York, NY 
     (2.7 miles away)
    Languages Spoken:
    English

    Yosef Dastagirzada is a Neurosurgery provider practicing medicine in New York, New York. Dr. Dastagirzada is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Chiari Malformation, Chiari Malformation Type 2, Schizencephaly, Endoscopic Transnasal Transsphenoidal Surgery, and Spinal Fusion.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    76 7th Ave, 
    Brooklyn, NY 
     (3.1 miles away)
    Languages Spoken:
    English

    Jessica Dowling is a Dermatologist practicing medicine in Brooklyn, New York. Dr. Dowling is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Congenital Hypotrichosis Milia, Milia, Epidermoid Cyst, and Hypohidrotic Ectodermal Dysplasia.

    Showing 1-20 of 54

    Last Updated: 04/28/2026

    What is the definition of Clouston Syndrome?

    Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

    When should I see a Clouston Syndrome doctor near New York, NY?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Clouston Syndrome doctor near New York, NY?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Clouston Syndrome doctors near New York, NY?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Clouston Syndrome doctors near New York, NY?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Clouston Syndrome doctor near New York, NY?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Clouston Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Clouston Syndrome doctor near New York, NY?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Clouston Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Clouston Syndrome doctors near New York, NY?

    Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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